Selected Institute for Bioethics Publications and Presentations, 2015-present

PUBLICATIONS 

2017

Brosco JP, Feudtner C. Shared decision making for children with Trisomy 13 and 18. JAMA Pediatrics 2017;171(4):324-325.doi:10.1001/jamapediatrics.2016.4943

Tenenbaum JD, Goodman KW. Beyond the Genetic Information Nondiscrimination Act: ethical and economic implications of the exclusion of disability, long-term care and life insurance. Personalized Medicine 2017;14(2):153-157. doi: 10.2217/pme-2016-0078

2016

Brosco JP. Child Rights and Clinical Bioethics: Historical Reflections on Modern Medicine and Ethics. Perspectives in Biology and Medicine 2016;58(3):356-64. doi: 10.1353/pbm.2016.0003.

Cañete R, Brito K, Guilhem D, Goodman KW. Perception and Satisfaction with Received Information Regarding Treatment for Intestinal Parasitic Infection in Cuban Patients. West Indian Med Journal 2016;65(3):519.

Champney TH., The business of bodies: Ethical perspectives on for‐profit body donation companies Clinical Anatomy 2016 Jan 1;29(1):25-9. doi: 10.1002/ca.22643

Isasi R, Kleiderman E, Knoppers BM. Editing policy to fit the genome? Science 2016;351(6271):337-9. doi: 10.1126/science.aad6778

Isasi R, Rahimzadeh V, Charlebois K. Uncertainty and innovation: Understanding the role of cell-based manufacturing facilities in shaping regulatory and commercialization environments. Applied Translational Genomics 2016;11:27–39.

Isasi R, Zuchner SL, Cañete R.  Genetics boosts US–Cuban links. Nature 2016;539:357 (Correspondence).

Fiore RN., Bioethics: Environmental, Encyclopedia of Global Bioethics Springer International Publishing. 2016 1-12 doi:10.1007/978-3-319-05544-2_466-1

Fiore RN, Goodman KW. Precision medicine ethics: selected issues and developments in next generation sequencing, clinical oncology and ethics. Current Opinion in Oncology 2016;28(1):83-7. . doi: 10.1097/CCO.0000000000000247

Goodman KW. Ethics, Medicine, and Information Technology: Intelligent Machines and the Transformation of Health Care. Cambridge: Cambridge University Press, 2016.

Goodman KW. Ethical and legal issues in decision support. In Berner ES, ed., Clinical Decision Support Systems: Theory and Practice, Third Edition. Switzerland: Springer International, 2016, pp.: 131-146.

Kahn PA, Champney TH, Hildebrandt S. The incompatibility of the use of unclaimed bodies with ethical anatomical education in the United States. Anatomical Sciences Education 2016, in press. doi: 10.1002/ase.1672

Litewka S. Mala Conducta Científica: Un fenómeno global y atemporal. In Ruiz de Chávez, MH., ed.,  Temas Selectos de Conbioética . Mexico, DF: Comisión Nacional de Bioética/Secretaría de Salud, 2016, pp.: 176-183.
 
2015

Brosco JP., Conflicts in family-centered pediatric care for patients with autism AMA journal of ethics. 2015 Apr 1;17(4):299.doi: 10.1001/journalofethics.2015.17.4.ecas1-1504

Brosco JP,  Bona A, Changes in Academic Demands and Attention-Deficit/Hyperactivity Disorder in Young Children. JAMA Pediatrics 2016;170(4):396-397. doi:10.1001/jamapediatrics.2015.4132.

Litewka S, Goodman KW., Pediatric Research in Latin America: Focus on Governance and Populations Asian Bioethics Review. 2015;7(2):179-87. doi: 10.1353/asb.2015.0014

Miklin DJ, Fiore RN., fMRI Imaging and Decision Making in Vegetative Patients: Ethics, Technology, and Welfare AJOB Neuroscience 2015 Apr 3;6(2):49-51. doi:10.1080/21507740.2015.1026001

PRESENTATIONS

Olvey S. Ethical considerations for medical directors and team physicians. International Council of Motorsport Sciences Annual Congress, Indianapolis, December 8, 2016. Link to curriculum

Isasi R. Human Gene Editing:  International Policy Landscape. Human Gene Editing Workshop, Stem Cell Network of Canada, McGill University and University of Miami, August 31st, 2016. Link to workshop summary

Champney TH. When it’s “Publish or Perish,” can scientific publishing be ethical? University of Zurich Institute of Biomedical Ethics and History of Medicine, Zurich, Switzerland, March 30, 2016. Link to series flyer

Fiore RN. The high-risk donor organ: What to tell or not tell. American Society of Transplant Surgeons, webinar, April 26, 2016. Link to details

Brosco J. Justice and child health: The obligations of pediatric clinicians. University of Utah 2016 David Green Memorial Speaker, Salt Lake City, UT, April 14, 2016. Link to details

Brosco J. Against informed consent? The case for paternalism in genomic newborn screening. University of Utah 2016 David Green Memorial Speaker, Salt Lake City, April 13, 2016. Link to details

Goodman KW. Ethics, health informatics and translational science. Mayo Clinic College of Medicine, Center for Clinical and Translational Science Grand Rounds, Rochester, MN, March 13, 2015. Link to presentation